privacy

Privacy in Ethics and Ebola: Public Health Planning and Response

Learning Objectives

Students should be able to:

1. Understand privacy concerns related to the collection, use, and sharing of biospecimens for research.

2. Describe ethical principles applicable to the collection, use, and sharing of biospecimens for research.

3. Discuss various approaches to protecting the privacy interests of persons whose biospecimens are shared.

 

Download module here.

User Guide for Public Policy Educators

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has developed educational materials for use in traditional and nontraditional educational settings.

The purpose of this guide is to highlight the most relevant materials for public policy educators to illustrate how they might be integrated into public policy education and curricula. This list is not exhaustive; rather, it is meant to serve as a quick reference to some of the most relevant materials.

User Guide for Public Health Professionals

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has developed educational materials for use in traditional and nontraditional educational settings.

The purpose of this guide is to highlight the most relevant materials for public health educators to illustrate how they might be integrated into public health classes, seminars, and workshops. This list is not exhaustive; rather, it is meant to serve as a quick reference to some of the most relevant materials.

User Guide for Human Subjects Researchers

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has developed educational materials for use in traditional and nontraditional educational settings.

User Guide for Legal Educators

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has developed educational materials for use in traditional and nontraditional educational settings.

The purpose of this guide is to highlight the most relevant materials for legal educators to illustrate how they might be integrated into legal education and training. This list is not exhaustive; rather, it is meant to serve as a quick reference to some of the most relevant materials.

Privacy in Privacy and Progress in Whole Genome Sequencing

Learning Objectives

Students should be able to:

1. Describe the privacy concerns related to whole genome sequencing.

2. Describe the ethical principles involved in reconciling privacy and progress in whole genome sequencing.

3. Describe the legal and policy considerations associated with protecting the privacy of individuals who contribute whole genome sequencing data and information.

 

Download module here.

Privacy Background

Learning Objectives

Students should be able to:

1. Describe the history of privacy protections in the United States.

2. Discuss the various practical, philosophical, ethical, and legal notions embedded in and related to the idea of privacy.

3. Describe the Bioethics Commission’s guiding ethical principles and the ways in which they relate to privacy.

4. Describe key legal cases and laws that shape the right to privacy in the United States.

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This is a work of the U.S. Government and is not subject to copyright protection in the United States. Foreign copyrights may apply.