Anticipate and Communicate

Classroom Discussion Guide on Ethics and Incidental Findings

This guide provides discussion questions and topics based on the Presidential Commission for the Study of Bioethical Issues’ report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts (Anticipate and Communicate), to help instructors integrate ethics discussions into a high school or college science course.

For Consumers: A Guide to Incidental Findings

Primary findings are the results you and your direct-to-consumer (DTC) provider are looking for when you sign up for a test. Incidental findings are results that your provider discovers, even though you were not looking for them. The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) released a report that helps DTC providers manage these incidental findings. This guide helps you understand what those findings might be, and how you might prepare for them.

For Research Participants: A Guide to Incidental Findings

Primary findings are the results researchers are looking for when they conduct a test. Incidental findings are results that they discover, even though they were not looking for them. The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) released a report that helps researchers manage these incidental findings. This guide helps you understand what those findings might be, and what questions you might ask the research team to prepare for them.

For Patients: A Guide to Incidental Findings

Primary findings are the results your clinicians (doctors, nurses, or technicians) are looking for when they conduct tests.  Incidental findings are results that they discover, even though they were not looking for them.  The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) released a report that helps clinicians manage these incidental findings.  This guide helps you understand what those findings might be, and what questions you should ask during your visit to prepare for them.

For Direct-to-Consumer Providers: Incidental and Secondary Findings

In December 2013, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) released its report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. The report outlines the types of findings that can arise from various tests and procedures in a variety of contexts, and makes 17 recommendations for the ethical and professional management of such findings.

For Researchers: Incidental and Secondary Findings

In December 2013, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) released its report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. The report outlines the types of findings that can arise from various tests and procedures in a variety of contexts, and makes 17 recommendations for the ethical and professional management of such findings.

For IRB Members: Incidental and Secondary Findings

In December 2013, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) released its report, Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings in the Clinical, Research, and Direct-to-Consumer Contexts. The report outlines the types of findings that can arise from various tests and procedures in a variety of contexts, and makes 17 recommendations for the ethical and professional management of such findings.

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