In Bioethics for Every Generation: Deliberation and Education in Health, Science, and Technology, the Bioethics Commission demonstrates how democratic deliberation and ethics education can go hand-in-hand to solve some of the most intractable problems in bioethics and beyond. The Bioethics Commission offers eight recommendations to strengthen and advance deliberation and education to improve policy-making in bioethics, and to create a more democratic and just society.
1. Discuss the importance of democratic deliberation as it relates to the development of synthetic biology and other emerging technologies.
2. Understand the guiding ethical principles for assessing emerging technologies and how they relate to the incorporation of synthetic biology technologies into society.
1. Describe the privacy concerns related to whole genome sequencing.
2. Describe the ethical principles involved in reconciling privacy and progress in whole genome sequencing.
3. Describe the legal and policy considerations associated with protecting the privacy of individuals who contribute whole genome sequencing data and information.
1. Discuss the ethical principles that give rise to an obligation to provide treatment or compensation for research related-injuries that arise from pediatric MCM research.
2. Describe the different arguments for treating or compensating injured adults versus injured pediatric research participants.
3. Describe the different ways that injured pediatric MCM research participants can obtain treatment or compensation and the strengths and limitations of these approaches.
In 2011, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) issued “Ethically Impossible” STD Research in Guatemala from 1946 to 1948. The report is the result of its ethical analysis aimed at uncovering the activities of U.S. Public Health Service personnel during studies conducted in Guatemala involving the intentional exposure of vulnerable populations to sexually transmitted diseases without their consent.