education

Community Engagement in Ethics and Ebola: Public Health Planning and Response

Learning Objectives

Students should be able to:

1. Discuss the importance of community engagement as it relates to public health emergency planning and response efforts.

2. Identify ways in which community engagement can facilitate ethical public health planning and response.

3. Consider different ways to engage communities in public health decision making both domestically and internationally.

 

Download module here.

Bioethics for Every Generation

In Bioethics for Every Generation: Deliberation and Education in Health, Science, and Technology, the Bioethics Commission demonstrates how democratic deliberation and ethics education can go hand-in-hand to solve some of the most intractable problems in bioethics and beyond. The Bioethics Commission offers eight recommendations to strengthen and advance deliberation and education to improve policy-making in bioethics, and to create a more democratic and just society.

Community Engagement in New Directions: The Ethics of Synthetic Biology and Emerging Technologies

Learning Objectives

Students should be able to:

1. Discuss the importance of democratic deliberation as it relates to the development of synthetic biology and other emerging technologies.

2. Understand the guiding ethical principles for assessing emerging technologies and how they relate to the incorporation of synthetic biology technologies into society.

Privacy in Privacy and Progress in Whole Genome Sequencing

Learning Objectives

Students should be able to:

1. Describe the privacy concerns related to whole genome sequencing.

2. Describe the ethical principles involved in reconciling privacy and progress in whole genome sequencing.

3. Describe the legal and policy considerations associated with protecting the privacy of individuals who contribute whole genome sequencing data and information.

 

Download module here.

Privacy Background

Learning Objectives

Students should be able to:

1. Describe the history of privacy protections in the United States.

2. Discuss the various practical, philosophical, ethical, and legal notions embedded in and related to the idea of privacy.

3. Describe the Bioethics Commission’s guiding ethical principles and the ways in which they relate to privacy.

4. Describe key legal cases and laws that shape the right to privacy in the United States.

Compensation in Moral Science: Protecting Participants in Human Subjects Research

Learning Objectives

Students should be able to:

1. Discuss the ethical principles that give rise to an obligation to provide treatment or compensation for research-related injuries.

2. Discuss the benefits and challenges associated with providing treatment or compensation for research-related injuries.

3. Describe international requirements and guidance concerning treatment or compensation for research-related injury.

Compensation in Safeguarding Children: Pediatric Medical Countermeasure Research

Learning Objectives

Students should be able to:

1. Discuss the ethical principles that give rise to an obligation to provide treatment or compensation for research related-injuries that arise from pediatric MCM research.

2. Describe the different arguments for treating or compensating injured adults versus injured pediatric research participants.

3. Describe the different ways that injured pediatric MCM research participants can obtain treatment or compensation and the strengths and limitations of these approaches.

 

Compensation Background

 Learning Objectives

Students should be able to:

1. Define compensation for research-related injury.

2. Distinguish between injuries incurred during research and injuries incurred in non-research contexts.

3. Describe ethical justifications for compensating injured research participants.

4. Identify and consider the challenges encountered in providing compensation for research-related injury.

5. Describe the different systems through which injured research participants can be compensated.

Vulnerable Populations in “Ethically Impossible” STD Research in Guatemala from 1946 to 1948

In 2011, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) issued “Ethically Impossible” STD Research in Guatemala from 1946 to 1948. The report is the result of its ethical analysis aimed at uncovering the activities of U.S. Public Health Service personnel during studies conducted in Guatemala involving the intentional exposure of vulnerable populations to sexually transmitted diseases without their consent.

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This is a work of the U.S. Government and is not subject to copyright protection in the United States. Foreign copyrights may apply.