Agenda for Meeting Eight: February 2-3, 2012, in San Francisco, Cal.

Millberry Union
University of California, San Francisco
500 Parnassus Avenue San Francisco, CA 94143

Thursday, February 2

9:00 – 9:15 a.m.  Welcome and Opening Remarks

Amy Gutmann, Ph.D.
Commission Chair

James Wagner, Ph.D.
Commission Vice-Chair

9:15- 10:30 a.m.  Session 1: Ethics and Practice of Whole Genome Sequencing in the Clinic                                     

Retta Beery
Mother of twins who benefitted from improved diagnosis gained by whole genome sequencing

Richard Gibbs, Ph.D.
Wofford Cain Professor, Department of Molecular and Human Genetics
Director, Human Genome Sequencing Center
Baylor College of Medicine

Daniel Masys, M.D.
Affiliate Professor, Biomedical and Health Informatics
University of Washington School of Medicine

10:30 a.m. – 10:45 a.m.  Break

10:45 a.m. – 12:00 p.m.  Session 2: Privacy I – Privacy and the Public Good                                      

George Annas, J.D., M.P.H.
Chair, Health Law, Bioethics & Human Rights
William Fairfield Warren Distinguished Professor
Boston University School of Public Health

Mark A. Rothstein, J.D.
Herbert F. Boehl Chair of Law and Medicine
University of Louisville School of Medicine

12:00 – 1:30 p.m.  Lunch Break

1:30 – 2:30 p.m.  Session 3: Privacy II – Control, Access and Human Genome Sequence Data      

Jane Kaye, D.Phil., L.L.B.
Director of the Centre for Law, Health and Emerging Technologies (HeLEX)
Oxford University                                             

John Wilbanks
Founder, Consent to Research
Senior Fellow, Kauffman Foundation
Research Fellow, Lybba

2:30 – 3:30 p.m.  Session 4: Privacy III – Law Enforcement Use and Access to Genomic Information

Melissa Mourges, J.D.
Assistant District Attorney
Chief, Forensic Sciences/Cold Case Unit
New York County District Attorney's Office

Pilar Ossorio, J.D., Ph.D.
Associate Professor of Law and Bioethics
University of Wisconsin-Madison

3:30 – 3:45 p.m.  Break

3:45 – 5:00 p.m.  Session 5: Roundtable

5:00 – 5:15 p.m.  Closing Remarks

Amy Gutmann, Ph.D.
James Wagner, Ph.D.

Friday, February 3

9:00 – 9:15 a.m.  Opening Remarks

Amy Gutmann, Ph.D.
James Wagner, Ph.D.

9:15 – 10:00 a.m.  Session 6: Notions of Self

John Perry, Ph.D.
Emeritus Professor of Philosophy
Stanford University
Distinguished Professor of Philosophy
University of California, Riverside

Marya Schechtman, Ph.D.
Professor of Philosophy
University of Illinois at Chicago

10:00—10:45 a.m.  Session 7: Research Update and Clinical Considerations                                 

Bernard Lo, M.D.
Professor of Medicine
Director, Program in Medical Ethics
University of California, San Francisco                            

Anthony Wagner, Ph.D.
Professor of Psychology and Neuroscience
Stanford University

10:45 a.m. – 11:00 a.m.  Break

11:00 a.m. – 11:50 a.m.  Session 8: Roundtable

11:50  – 12:00 p.m.  Concluding Remarks

Amy Gutmann, Ph.D.
James Wagner, Ph.D.

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