Millberry Union
University of California, San Francisco
500 Parnassus Avenue San Francisco, CA 94143
Thursday, February 2
9:00 – 9:15 a.m. Welcome and Opening Remarks
Amy Gutmann, Ph.D.
Commission Chair
James Wagner, Ph.D.
Commission Vice-Chair
9:15- 10:30 a.m. Session 1: Ethics and Practice of Whole Genome Sequencing in the Clinic
Retta Beery
Mother of twins who benefitted from improved diagnosis gained by whole genome sequencing
Richard Gibbs, Ph.D.
Wofford Cain Professor, Department of Molecular and Human Genetics
Director, Human Genome Sequencing Center
Baylor College of Medicine
Daniel Masys, M.D.
Affiliate Professor, Biomedical and Health Informatics
University of Washington School of Medicine
10:30 a.m. – 10:45 a.m. Break
10:45 a.m. – 12:00 p.m. Session 2: Privacy I – Privacy and the Public Good
George Annas, J.D., M.P.H.
Chair, Health Law, Bioethics & Human Rights
William Fairfield Warren Distinguished Professor
Boston University School of Public Health
Mark A. Rothstein, J.D.
Herbert F. Boehl Chair of Law and Medicine
University of Louisville School of Medicine
12:00 – 1:30 p.m. Lunch Break
1:30 – 2:30 p.m. Session 3: Privacy II – Control, Access and Human Genome Sequence Data
Jane Kaye, D.Phil., L.L.B.
Director of the Centre for Law, Health and Emerging Technologies (HeLEX)
Oxford University
John Wilbanks
Founder, Consent to Research
Senior Fellow, Kauffman Foundation
Research Fellow, Lybba
2:30 – 3:30 p.m. Session 4: Privacy III – Law Enforcement Use and Access to Genomic Information
Melissa Mourges, J.D.
Assistant District Attorney
Chief, Forensic Sciences/Cold Case Unit
New York County District Attorney's Office
Pilar Ossorio, J.D., Ph.D.
Associate Professor of Law and Bioethics
University of Wisconsin-Madison
3:30 – 3:45 p.m. Break
3:45 – 5:00 p.m. Session 5: Roundtable
5:00 – 5:15 p.m. Closing Remarks
Amy Gutmann, Ph.D.
James Wagner, Ph.D.
Friday, February 3
9:00 – 9:15 a.m. Opening Remarks
Amy Gutmann, Ph.D.
James Wagner, Ph.D.
9:15 – 10:00 a.m. Session 6: Notions of Self
John Perry, Ph.D.
Emeritus Professor of Philosophy
Stanford University
Distinguished Professor of Philosophy
University of California, Riverside
Marya Schechtman, Ph.D.
Professor of Philosophy
University of Illinois at Chicago
10:00—10:45 a.m. Session 7: Research Update and Clinical Considerations
Bernard Lo, M.D.
Professor of Medicine
Director, Program in Medical Ethics
University of California, San Francisco
Anthony Wagner, Ph.D.
Professor of Psychology and Neuroscience
Stanford University
10:45 a.m. – 11:00 a.m. Break
11:00 a.m. – 11:50 a.m. Session 8: Roundtable
11:50 – 12:00 p.m. Concluding Remarks
Amy Gutmann, Ph.D.
James Wagner, Ph.D.
