Learning Objectives

Students should be able to:

1. Describe the privacy concerns related to whole genome sequencing.

2. Describe the ethical principles involved in reconciling privacy and progress in whole genome sequencing.

3. Describe the legal and policy considerations associated with protecting the privacy of individuals who contribute whole genome sequencing data and information.

Download module here.

Download the Background module on privacy here.

Listen to "Episode 4: Privacy and Progress", an episode of Ethically Sound, a podcast of the Presidential Commission for the Study of Bioethical Issues.