Community Engagement in Privacy and Progress in Whole Genome Sequencing

Learning Objectives

Students should be able to:

1. Describe the importance of engaging communities in the sharing of whole genome sequence data.

2. Explain how community engagement helps advance the ethical principles articulated in Privacy and Progress.

3. Identify ways in which community engagement might facilitate the recommendations made in Privacy and Progress.


Download module here.

Download the Background module on community engagement here.


Listen to "Episode 4: Privacy and Progress", an episode of Ethically Sounda podcast of the Presidential Commission for the Study of Bioethical Issues.


Ethically Sound Episodes

The Bioethics Commission has launched a new podcast series entitled Ethically Sound.  

Each podcast is playable direct online from the link(s) below or from SoundCloud, iTunes or the Ethically Sound Playlist on Youtube.  Follow the hashtag #EthicallySound for launch announcements.

Safeguarding Children

Ethics and Ebola

Anticipate and Communicate

Privacy & Progress

Gray Matters

New Directions

Moral Science

Ethically Impossible

Bioethics for Every Generation

Charting a Path Forward

This is a work of the U.S. Government and is not subject to copyright protection in the United States. Foreign copyrights may apply.