Learning Objectives

Students should be able to:

1.Describe current informed consent procedures for whole genome sequencing.

2.Describe recommendations for improving informed consent procedures for whole genome sequencing.

3.Identify aspects of whole genome sequencing that raise distinct ethical and practical issues with regard to informed consent.

4.Describe how data sharing relates to and affects the informed consent process.

5.Describe how privacy relates to and affects the informed consent process.

Download module here.

Download the Background module on informed consent here.

Listen to "Episode 4: Privacy and Progress", an episode of Ethically Sound, a podcast of the Presidential Commission for the Study of Bioethical Issues.