Students should be able to:
1.Describe current informed consent procedures for whole genome sequencing.
2.Describe recommendations for improving informed consent procedures for whole genome sequencing.
3.Identify aspects of whole genome sequencing that raise distinct ethical and practical issues with regard to informed consent.
4.Describe how data sharing relates to and affects the informed consent process.
5.Describe how privacy relates to and affects the informed consent process.
Download module here.
Download the Background module on informed consent here.
Listen to "Episode 4: Privacy and Progress", an episode of Ethically Sound, a podcast of the Presidential Commission for the Study of Bioethical Issues.
Ethically Sound Episodes
The Bioethics Commission has launched a new podcast series entitled Ethically Sound.
Each podcast is playable direct online from the link(s) below or from SoundCloud, iTunes or the Ethically Sound Playlist on Youtube. Follow the hashtag #EthicallySound for launch announcements.
Ethics and Ebola
Anticipate and Communicate
Privacy & Progress
Bioethics for Every Generation
Charting a Path Forward
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