The blog of the 2009 – 2017 Presidential Commission for the Study of Bioethical Issues

Ethically Sound Episode 3: Anticipate and Communicate

The third episode of the Bioethics Commission’s podcast series, Ethically Sound is now available. This 10-episode series has been created to bring the diverse body of the Commission’s work to a wide audience. Today’s episode, “Anticipate and Communicate,” focuses on the Commission’s sixth report Anticipate and Communicate: Ethical Management of Incidental and Secondary Findings, which addressed how to ethically manage incidental findings—findings that lie outside the aim of a test or procedure—that arise in clinical, research, and direct-to-consumer contexts.

In the report, the Bioethics Commission analyzed the ethical issues related to incidental findings that could arise in clinical, research, and direct-to-consumer settings. During its public meetings, the Commission heard from individuals who have been affected by incidental findings, including Carol Krucoff, a yoga teacher and journalist. Ms. Krucoff spoke before the Commission about the discovery of her brain tumor, which was an incidental finding that resulted from an MRI taken after she fainted during a marathon. Ms. Krucoff opens this podcast by recounting her experience and sharing how the discovery of her incidental finding affected her life. She notes that “advances in imaging technology have made it increasingly common for healthy, asymptomatic people like me to learn of such a disturbing incidental finding.”

The podcast also features Bioethics Commission Member Dr. Christine Grady, Chief of the Department of Bioethics at the National Institutes of Health Clinical Center, who was interviewed by Hillary Wicai Viers, a former Communications Director with the Commission staff. Dr. Grady explains how her background as a researcher and as a nurse informed her understanding of the ethical challenges that incidental findings pose. Dr. Grady also shares how the diverse perspectives that the Commission members brought to the discussion helped address these ethical challenges in a wide range of contexts. “It was really very beneficial and helpful to hear from people who had received information about incidental findings and had vastly different experiences and perspectives on the matter,” Dr. Grady said in reference to the inclusion of diverse perspectives.

Episode 3: Anticipate and Communicate of Ethically Sound is available on our website, as well as on our SoundCloud, iTunes, and YouTube pages. In addition to this episode, listeners can access the first episode in this series, “Safeguarding Children,” and the second episode, “Ethics and Ebola.” Stay tuned for the fourth episode of Ethically Sound, “Privacy and Progress,” which will be available on October 3, 2016. We welcome comments and feedback at info@bioethics.gov.

 

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About blog.Bioethics.gov

This is a space for the members and staff of the 2009 -2017 Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

As of January 15th, 2017 this blog will no longer be updated but continues to be available as an archive of the work of the 2009-2017 Presidential Commission for the Study of Bioethical Issues

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