The blog of the 2009 – 2017 Presidential Commission for the Study of Bioethical Issues

Studying the Study Guide: Key Uptake of Educación Ética

Since first recommending ethics education across disciplines in New Directions: The Ethics of Synthetic Biology and Emerging Technologies, the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) has been committed to the production, dissemination, and encouraging the use of ethics educational resources. Accordingly, the Bioethics Commission is eager to learn of examples of how its educational tools are being used and how they might be improved. At a recent workshop held at the Pan American Health Organization (PAHO), the Bioethics Commission was excited to learn that Carla Saenz, Ph.D., Bioethics Regional Advisor at PAHO, recently distributed the Spanish translation of the Study Guide to “Ethically Impossible” STD Research in Guatemala from 1946 to 1948, Educación Ética: La Guía de Estudio para “Éticamente Imposible” Investigación sobre ETS en Guatemala de 1946 a 1948 to the Investigación ÉTICA network. Upon receipt of the Study Guide, the Investigación ÉTICA network – which comprises over 1,100 ethics review committees and research ethicists in Latin America and the Caribbean – sent Saenz “very appreciative responses for sharing such a training tool.”

“I was particularly interested in the translation of the Study Guide and its further dissemination because I think it meets a specific regional need,” said Saenz. Addressing the challenges in bioethics training in the Latin American region is a topic recently explored by Saenz and several co-authors in a paper published in the Journal of Empirical Research on Human Research Ethics.[1] Saenz et al., concluded that resources for ethics education should be created for all levels and incorporate critical thinking exercises and case studies. Additionally, they argued that making resources available in Spanish is the key to strengthening the analytical skills of individuals working in research ethics in Latin America. Bioethics materials in Spanish are “really crucial to close the gap on bioethics training between Latin America and the English speaking world,” said Saenz.

The Bioethics Commission designed the Study Guide to “Ethically Impossible” STD Research in Guatemala from 1946 to 1948 to assist those who wish to focus on the ethical significance of these experiments. Each section of the Study Guide includes a review of relevant facts, excerpts from documents contemporaneous to the experiments, and a set of further readings. This material will assist readers who wish to explore the record in further detail or prepare for a more informed discussion of research in light of this example of gross ethical violations.

“The Bioethics Commission is very pleased to learn that the Spanish Study Guide is being distributed and used by such a large Spanish speaking network of researchers and ethicists. All feedback on the tools is extremely valuable, and we’re grateful to Dr. Saenz both for sharing the resource with her colleagues and for sharing the story with us,” said Hillary Wicai Viers, Bioethics Commission Communications Director.

Please share your stories about using the Bioethics Commission’s educational tools via education@bioethics.gov.

All of the Bioethics Commission’s education materials are free and available on www.Bioethics.gov.

 

[1] Saenz, C., et al. (2014). Twelve years of Fogarty-funded bioethics training in Latin America and the Caribbean: Achievements and Challenges. Journal of Empirical Research on Human Research Ethics, 9(2), 80-91.

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About blog.Bioethics.gov

This is a space for the members and staff of the 2009 -2017 Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

As of January 15th, 2017 this blog will no longer be updated but continues to be available as an archive of the work of the 2009-2017 Presidential Commission for the Study of Bioethical Issues

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