The blog of the 2009 – 2017 Presidential Commission for the Study of Bioethical Issues

Examining Models for Integrating Ethics and Neuroscience Research

The Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) this morning started the second day of its 16th public meeting by calling on four speakers to share their thoughts on strategies for integrating ethics into neuroscience. The speakers included Pamela Sankar, Ph.D., Associate Professor in the Department of Medical Ethics and Health Policy at the University of Pennsylvania; Barbara Herr Harthorn, Ph.D., Director of the National Science Foundation’s Center for Nanotechnology in Society; Mildred Cho, Ph.D., Associate Director of the Stanford Center for Biomedical Ethics; and Erik Fisher, Ph.D., Associate Director for Integration at Arizona State University’s Center for Nanotechnology in Society.

Amy Gutmann, Ph.D., President of the University of Pennsylvania and Chair of the Bioethics Commission emphasized that ethical issues are not unique to neuroscience, however they could see increased public attention given that neuroscience is a young science and concerns an organ that helps define who people are. That’s why the Bioethics Commission is exploring ways to integrate ethics into neuroscience early, said Amy Gutmann.

Sankar told the panel of the history of the Ethical, Legal, and Social Implications Research Program (ELSI), founded as part of the Human Genome Project. While the program struggled to bridge the gap between ELSI research and policy, it “gave us some very good models that we could look to going forward.” One of those models includes the establishment of consortia of researchers who get together and discuss ethical issues. “I think they resulted in the creation of a new community of people” that fostered positive discussion, she said.

Meanwhile, Harthorn agreed that the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative will raise important ethical questions. Determining the nature and extent of the ethical and societal concerns that the initiative must address will require funding for social, ethical and behavioral research and in infrastructure for coordinating that work, Harthorn said.

Cho told the Bioethics Commission about research ethics consultation services (RECS), which are programs to provide ethics guidance to scientists on their research. Survey and interview data that Cho and other scholars have collected suggest that a majority of scientists find these consulting services to be personally or professionally useful. Scientists, when planning a research project, can go to these services with a specific ethical concern in mind or they can ask the consultants to assess whether any ethical concerns exist to begin with. “I think that research ethics consultation is becoming a more established institutional mechanism for integrating ethical and social implications into biomedical research,” she said.

Fisher, meanwhile, discussed how embedding a social scientist or humanist into a research lab for a few months can help scientists learn how ethics plays into their own work.

Despite the existence of several models of ethics integration, several speakers noted that scientists are not always aware of scientific ethics resources that are available to them; they do not understand what ethics means in science, or may not be interested. Some of the speakers warned that scientists cannot be compelled to be curious about or strongly mindful of ethics. Sometimes scientists may feel reluctant to embrace change in their workplace climate, Fisher said. Some speakers noted the need to explain why ethics important to science and how to get scientists interested in ethics.

Sankar argued for reforming science education from its earliest stages so that up-and-coming scientists learn to see how ethics goes hand-in-hand with scientific research. “The day has passed where we can have [only] commissions or consortia and feel like we’re fundamentally dealing with it,” she said. Sankar also said some scientists may view learning about and practicing good ethics more about complying with rules than about advancing responsible research. It might be wise, she said, to frame ethics integration to scientists as how scientists can make their science better, not, “What do we do to stay out of trouble?”

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This is a space for the members and staff of the 2009 -2017 Presidential Commission for the Study of Bioethical Issues to communicate with the public about the work of the commission and to discuss important issues in bioethics.

As of January 15th, 2017 this blog will no longer be updated but continues to be available as an archive of the work of the 2009-2017 Presidential Commission for the Study of Bioethical Issues

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